Vanishing White Matter Disease (VWM) - Leukodystrophy is a degeneration of the brain. VWM is one of many different leukodystrophies. VWM has a face around the globe.
Currently there is no cure or treatment for VWM. We are in race against time to Find a Cure for VWM ! Time is not on our side; most children born with this genetic disease die at an early age. To read more about VWM research at Tel Aviv University (TAU)
see: https://english.tau.ac.il/impact/VWM
To read more stories see: https://medium.com/leukodystrophy-awareness
Little over a year ago we have joined #SavingChloeSaxby Team to #findacureforvwm
Watch this video: https://www.youtube.com/watch?v=tuh899edPOQ&t and see: www.savingchloesaxby.com
I wanted to invite Saving Chole Saxby to submit a short 2-3 sentence summary of the work you guys are doing for VWM, would like to include this on our Foundations and Organizations site. WE love your videos!